The thing with medical reports is you just havn’t got a
bloody clue what they are talking about.
Ok so we know that I have further progression, but where is the further
progression. Saying ‘Hemipelves’ to me
means diddly shit, and so I was very lucky that this lovely oncologist took
time with me to explain what everything meant.
Today also taught me why there are so many delays with appointment
times, because even though I was 2 hours late getting in, I didn’t leave the
hospital until 4pm and spent approximately one hour with my oncologist.
CT Scan (But need a new one)
I was told that there was slight progression, but to see it
in writing shows me what is actually happening. This report is compared with the previous scan
dated on the 1st March 2012. the
biggest lesion on the right lobe is 13x11mm and a new large lesion measures 11
x11mm. So it’s not too bad, they are
still small.
There is some emphysematous change in both lungs
particularly in the upper lobes, which means; there is an abnormal increase in
the size of the air spaces in my lungs, resulting in laboured breathing and an
increased susceptibility to infection.
There is no evidence of metz.
MRI of Spine
Spinal surgery between C2 and C4 is noted with no
significant change in the appearance compared with previous Scan image. This means that my metal bionic parts are
still intact. This report states that
there is Extensive bony metz disease throughout the spine including the lower
thoracic and lumbar. The appearance of
disease has progressed with an increase in size and number of metz. Degenerative changes are also present in the
lumbar and a mild prosterior disc bulge at the L5/S1 vertebral level.
Whole Body Bone Scan
There is multiple additions of increased activity consistent
of bony metz. Even though my oncologist
went through this with me, my brain could not hold on to the information and so
with the wonders of Google I have been able to pin point where the metz are. Sites
involved include;
The skull vault and the whole of my spine all the way from
the Cervical to the Lumbar. Both Sacral
Alae, Both Hemipelves including the Acetabulum, Ischium and inferior pubic bone
and iliac bone, some big meaningless words there aint there to us normal none
medical folk, anyone in a nut shell they are all in the hip area of our big
skeleton. There is also disease in the Left
femur (top leg) in the intertrochanteric region, which is in the top part and
femur head is affected, which again is all closely tied to the area of my hips.
Increased activity is seen in left
coraacoid and gelnoid protions of my left shoulder and further area of focal
uptake is seen at the left suborbital ridge, which is the bony ridge located above the eye sockets.
There is activity in right, acetabulum and ischium extending into
the infereiour pubic remus, which again is all in the hip area. My left sternoclavicular joint represents
degenerative changes which is the joint between the sternum (chest bone) and
collarbone. The cancer has also
progressed to the bilateral ribs.
So there we have it. As soon as my oncoligst told me places, it
explained to me what had been happening.
You see, I have complained about my left hip especially over the last couple of months,
and said it felt like my hip was going to dislocate, this is the side that it
is in my femur ball. Unfortuanetly CT
scans just don;t show up bone properly.
Then there is the times that I have been in hospital for pain in and around
my chest, I have had scans on my lungs, but maybe some of the pain that I had
and defiantly the pain that I am having lately, is connected with the bony metz
of the ribs.. I can’t sneeze cos it bloody hurts and I can’t cough, but yet I
can take in long shallow breaths that don’t effect me, as the pain that I have
doesn’t seem to feel internal. The pubic
bone area for example, intercourse has been a little uncomfortable, so again is
this why. Then there has been my latest
moaning of having migranes without the headache. No headache appears but yet my left eye,
becomes blurred and I get that tunnel double vision, stars moving around like
nutters, making it impossible to see due to them being right in the line of
sight. It doesn’t last long, maybe
between 5 and 30 minutes, but it is so bloody annoying, especially when I can’t
see my iphone to check my facebook ha ha.
(have to get my priority’s in order don’t I)
--------------------------
The news of my results, shocked everyone, and I am please
and thankful that my mum held it together for me when I phoned her. I tried to make it as light hearted as
possible whilst telling her and used her knowledge of being an ex nurse (which was before I was born) by trying
to read out the blooming great big medical jargon that was typed up on the
report. I think it lightened the mood
and rather than my mum thinking Oh crap, she had to use her brain on trying to
think of where the areas were. Good side
tracking me thoughts. We had a bit of a
giggle too, Have you tried saying these words out loud, and on top of being
super dozily drugged up on morphine meds, I finished up having to spell the
fookers.
Lee took the news quite well, and for the first time posted
on his facebook, asking for his friends to say a prayer for me. Big huge turn around here, as when I met Lee
all those years ago in 2003, he wasn’t what you call a believer. He beloved and didn’t believe if you know
what I mean, he was more of a person that needed proof that things existed, he
need to see things, but for this last 5 yrs, his whole attitude has changed in
that department. I would like to thank
his friends for their comments to him; you really did make a difference. I would also like to thank all my fb friend
too not to mention my mum and family and my special little circle of amazingly close
friends. I know it’s times like this it’s
hard, but as I said, it wasn’t all bad news.
The good news is that I can start treatment to start killing off my
squatters and the super duper good news is that the progression is still in my
bones. Better there than going out of
control in my liver or spreading to another organ.
So after talking things through with Lee and then after my
phone call with my mum, what did I do next.
Did I sit and dwell on the fact that the bone metz has gone mad. Yeah I’m not chuffed about it, who would be,
especially with the skull part cos its a bit too close to my brain for my
liking. Did I then call the next person
on my list to of contacts to be informed?
Nope, I left my mum and Lee to do that.
I did what I do best. I got
changed, put on a bit of slap and went to the Pub ha ha... Pauline picked me up
and we went to the bloody pub for a carvery and a huge glass of wine. Now thats how you do it aint it. We had a fab time, chatting and stuffing our faces
with 3 different meats and tons and tons of veggies all topped off with a Yorkshire
pudding and onion gravey. Thank you Pauline,
your a star.
Whilst am on the thank you moment, I have to thank my sexy
gorgeous hubby, he is the most perfect man I have ever had the privilege of
knowing, I have no idea how he has put up with me especially over the last
month or so cos I have been one super bitch with a biggest anger management
problem ever. He has took it on the chin
whilst I have snapped at him for no reason what so ever, he has listened to me moan, stood there whilst
I ignored him (not on purpose but when my mind has gone elsewhere) but yet he
has not moaned about my behaviour once.
He smiled and given me comfort at all times, he has done all the
housework, done the shopping, taking the dogs out, the list goes on and I just
wanted to say that I am the luckiest woman alive to have such a kind,
considerate, sexy, gorgeous husband. And
Lee, I love you with all my heart MmWhaaa xxx
2 comments:
You truly are amazing. Your strength and courage is an inspiration. Fight on and live life to the max x
Thank you Sharna and I will do xxx
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